I want to apologize for not replying to all comments right away–I’m horrible at it. Which baffles me because I figured I would be good at it. Many times I am reading and replying to comments, then something shiny (a text message, an e-mail, taking Storm out–not that that is always “shiny” but you catch my drift) catches my eye. And when that happens, I usually forget what I was doing or working on. That is the product of my Lupus/Fibro Fog. Every so often I try to remember to go through the comments and see the ones that I have missed. The key words there are “try to remember.”
I found something I need to look at when feeling low. I suggest you look at Thug Unicorn on FB for some feel good and ass kicking mantras.
These last two, or three (?) weeks have been very painful for me. Headaches (although at times they feel like migraines), earaches, neck and upper back pain non-stop, all day, every day. I tried a few things and they didn’t work. I didn’t want to visit my doctor though because I knew what he would say, that I’m clenching my jaw at night and tensing up. Last time this happened, he couldn’t figure anything out so I went to an ear specialist. But that was so long ago that I can’t remember what the specialist said, all I know is that nothing came of it. My doctor decided though to switch up my night meds a little and see if it would help. I didn’t notice any difference that first night, so along with my new meds he also wanted me to take my old ones. Oh man, I slept soooo deep it was fabulous! Take that, insomnia! Ha! I love sleeping even more now. The downside is I am still in pain during the day. So I need to make another call to the doctor.
Like most people, I Googled my symptoms and I am fairly certain I have TMJ (The temporomandibular joint) issues. It mentions for TMJ issues that I would need to see a dentist. Well Medicare doesn’t cover dentistry. So, once I get my next monthly funds, I will be purchasing a mouth guard for night. I should have gotten a mouth guard years ago as I also grind my teeth at night. But I kept putting it off, maybe part being in denial that I actually need one. This time the pain is too great to not get one to see if it helps.
This pain has made me aware though, how much I am lacking with my mindfulness and meditation. So I am forcing myself to get back into those habits. I feel they truly make a difference in my life and I feel that life is better with those habits.
My lack of Storm pictures has been bugging me but I think that is mostly due to the cold weather. I had some flowers in my possession (thanks to my kind neighbor) so decided to take advantage of them. Now, I realize my pictures are nothing too crazy, but I’m posting them anyway. 🙂
So mentally I am feeling better. I figure if my friends don’t want to be in my life, then I will just find some friends that care. Although it is somewhat difficult to do if you never go out and socialize. Ha! Most of the time I don’t feel well to go out. There are a couple writing groups that have had meet ups, but it’s usually only once a month and I tend to have more bad days than good in a month’s time. I will still try to go to future ones though, I’m not giving up.
At the beginning of the month my mom and I went to a showing of Cirque Du Soleil. I have never been to one before and it was BRILLIANT! Seriously, if you have the chance, GO. It is totally worth the money. Going to that with my mom really helped me get out of my depressed/negative funk.
Now how I feel physically is a different story. My Lupus is in a flare and has been mean to my stomach all of last week, making it feel nauseated and acidic. My fatigue has been horrible. I get about 12 hours at night then usually can’t stay awake during the day so I take a nap on top of the 12 hours. No, I’m not getting “too much” sleep. I listen to my body. Besides, with Storm wanting to go outside every 3-4 hours, I don’t have a chance. My Fibro areas have been painful and my Lupus has been making my joints ache. I know it will be fine though, the flare just needs to run its course.
Lately I have been obsessed with a book series about a demon chic that kicks ass! 🙂 The author is Pippa DaCosta and the first in the series is called Beyond the Veil. Seriously, it’s been ridiculous. It’s the only thing I do during the day and as soon as I finish one, I immediately go online and purchase the next in the series. It has been quite some time since an author has grabbed my attention like that. But it is possible that I can’t stop reading her books because I haven’t read any other demon series/books. I’m not sure if men would like it as it has some romance. But check it out! The prequel is a bit darker than the rest of the series, but the first in the series is currently free on Amazon. And that is how I became hooked. 🙂
I had a couple ‘snaps’ from Snapchat that I thought you guys might like. Here is one but I will make another post for a few more. I hope you guys are doing well and I will try to visit some of your blogs as I know I am behind! 🙂
Holidays (mostly Christmas) can be very depressing for someone with a chronic illness, especially if they do not have a significant other. It could be that that person is not able to partake in festivities due to how shitty they feel. Another reason may be because they are on disability income and cannot afford gifts for the important people in their lives. Yes, it’s not about gifts, but it’s about being with family and friends. However it’s hard to keep that thought as everyone around you are opening gifts. And TV sure as hell doesn’t help. Every other commercial is about gifts, and what you are getting your loved one. Because more than ever, you want to be watching the surprise and happiness on their face when they open the gift from you.
These last few weeks I have been in a downward spiral with my depression. I am trying things and skills I learned in therapy to try and get back in the right mindset but nothing is working. I feel completely alone and lonely. It’s been a long time since I have cried this much. A factor that doesn’t help is I feel my close friends have not been there for me during this difficult time. A support group/circle is very critical to someone with a chronic illness (even for a normal person). Bless my mom for her support and putting up with my depressing texts, I would be worse off if she were not in my life. I have thought about contacting my therapist but I keep telling myself that I will soon feel better and back to my old self (and actually believe it) so there is no need to. But that hasn’t really been working either…
This is where my therapy skills that I learned kicks in: The negative thoughts (I thought about putting “voices,” then decided against it haha) are saying that my friends don’t care about me (I have voiced my opinion to them that holidays are depressing but they haven’t bothered to check on me.). But my therapy skills say, ‘let’s list reasons why they are unavailable and then choose a more realistic reason why they aren’t there for me: Do they have kids? A job? Significant other? Health problems? So every time I think a negative thought, I counteract it with a positive or realistic thought. But it’s not sticking. 😦 And I realize that everyone has a life so they will be busy and that’s why I don’t hear from them. But my depression makes me focus on only ME and nothing else. Why things aren’t working out for ME. Me, me, me. I’m not dismissing that depression is fake, it is very much real. When I find out my friends are not happy or sick, I try to contact them right away to see if things are okay. But I feel that they don’t do it in return. Don’t I deserve to feel loved? 😦