Well, so much for trying to get blogs written for Lupus Awareness Month! Hahaha! Oh well, at least I was able to get a couple done. And that is just how a person with Lupus needs to think; if it’s not done, then it’s not done and not to fret about what did not get done that day. However, I am fully aware that this easier said than done. At times I struggle with the frustration of how to let things go and\or take one day at a time. And honestly I don’t know if I would have learned these lessons, if not for Lupus.
This month is also Fibromyalgia Awareness Month with the National Awareness Day being May 12th!
Lupus and Fibromyalgia are so similar that some days I can’t tell which disease I am dealing with. Below are some Fibromyalgia symptoms
Thank you for taking the time to read these awareness posts! And remember, knowledge is POWER! 🙂
Yes, today is World Lupus Day! Get the word out as much as you can!
Flares are a bitch. You never know how long it will last or when it decides to pop up. In high school, I always became sick with something right when school would start up in September. I wasn’t diagnosed yet but we just blamed it on bad luck. When was I diagnosed? In August, just a few weeks shy of starting college as a freshman. My mom and I can’t help but wonder if the stress of going back to school is what caused me to be sick around that time. And that perhaps, in high school I had Lupus all along.
Isn’t the common flare trigger above just crazy? But it is the truth; Lupus really restricts your life. Consider no longer being able to spend hours outside in the sun without the proper equipment such as sun block, a hat, shade and clothing that covers most of your body. Not only does the sun bother me but the heat (or humidity) as well. If I spend an amount of time in the heat, I usually need to go somewhere with cool air and nap otherwise I am basically a zombie.
That is all I can do for now. Thanks for reading! 🙂
For the month of May I was going to post something about Lupus every day, but my Lupus had other ideas! All of last week I felt like crap. I was nauseated, had a fever and wicked heartburn. I got heartburn from eating peanut butter toast with a glass of water. And no, I am not pregnant because there is another part of the equation that is missing for me to be pregnant. Those symptoms sound very much like the flu, yes? That is what I deal with as part of my Lupus. Sometimes I’m not even sure what my nausea is from, it could be the disease itself or my medications.
Literally, everything is a SURPRISE with Lupus. Including when it decides to be active, or when it decides to take it down a notch. It is extremely frustrating if you are a planner, like yours truly. It didn’t bother me so much when it wasn’t too active while I held a full time job. But ever since when my Lupus became more active and it forced me to stop working, I have had to learn to fly by the seat of my pants. I have had to take one day at a time and sometimes even one moment at a time.
So NOW for the month of May, I plan on posting bits of info and/or pictures relating to my illness. I can’t promise you anything but will try my darn hardest. 🙂